It takes an extraordinary person to go after a global pseudoscience network and dismantle it, piece by piece. The network involved is the Genesis II cult, whose schtick has been to promise “miracle” cures to parents of autistic children. If they would only drink bleach, or have it forced up their rectums, their children would be cured of autism. These people have made their fortunes by selling industrial bleach to vulnerable parents. They couldn’t care less who got hurt in the process. Despite negative publicity and widespread condemnation, they seemed unstoppable. Business is business, right?
Then someone – a parent of autistic children – took them on. Working with concerned parents in other countries, she got the media to take note. By contacting the papers, independent journalists, TV stations, radio stations and networks, she brought the church’s tactics into the light. Documentaries were commissioned, special investigations produced, exposing Genesis II for who they were. At this time, the cult and their associates are in disarray. The light of publicity has not been kind to them. Some of the perpetrators are in prison, and more criminal convictions may soon follow.
The person who helped to make this happen is Fiona O’Leary. Fiona is an extraordinary person who I’m proud to know. Based in West Cork in Ireland, Fiona spends hours each day following up leads, talking to people around the world, reaching out to parents and victims – all the while getting the message out about the bleacher cult and their tactics. Fiona herself is on the autistic spectrum, which perhaps contributes to her tenacity. She is courageous to a fault; she has a strong sense of justice and she won’t easily give up.
Enter Andrew Wakefield. Wakefield is notorious in pseudoscience circles, having been responsible for perhaps the greatest health scare in recent memory. The story of Andrew Wakefield is as bad a tale of professional misconduct as it is possible to find. After the publication of a now discredited and retracted paper that associated the MMR vaccine with bowel and brain damage, a public health crisis emerged that resulted in old-diseases making an unwelcome return, with avoidable injury and needless deaths following in their wake. Wakefield’s medical license was revoked after he failed to disclose financial conflicts of interest and ethics violations.
Wakefield has been working hard to restore his disgraced reputation. His latest attempt is “Vaxxed“, a documentary that attempts to create a parallel history of what really happened, while scaring the bejesus out of parents. The Guardian noted how the documentary ignores contradictory evidence, while rehashing utterly discredited claims. The documentary film-maker Penny Lane commented “this film is not some sort of disinterested investigation into the ‘vaccines cause autism’ hoax; this film is directed by the person who perpetuated the hoax.” The Washington Post said it should come with a warning label: “May cause irrational anxiety, especially if taken with an empty head.” Variety Magazine called it a “scientifically dubious hodgepodge of free-floating paranoia, heart-rending imagery and anti-Big Pharma conspiracy mongering.”
As far as I am aware, none of these highly reviewers received a threat of legal action from the producers of the movie. However, last week, Fiona O’Leary did. According to the legal notice sent to Fiona “We will ask for punitive damages and financial compensation for all losses to our business directly resulting from your actions.”
What utter cowards these people are. Fiona was within her rights to alert people to the vast problems inherent in the documentary – the facts left unsaid, the real story about what Wakefield had done, the treatment of his critics. “Vaxxed” is a piece of dangerous propaganda with a direct public health impact. By attempting to rekindle the mythical link between vaccines and autism, it puts needless guilt on parents of autistic children, implying – when there is no empirical evidence to back it up – that somehow they are responsible for what happened. If you were a parent and you knew the damage that such allegations could wreak, wouldn’t you be anxious to criticise them too? Clearly, Cinema Libre, like a classic bully, prefer to go for the small people first.
So, instead of accounting for the massive problems in their worthless and dangerous pseudo-documentary, Cinema Libre took a campaigner with a distinguished record of defending autistic parents and they threatened her with legal action. Honestly, I hope this move backfires on them utterly. They deserve every piece of bad publicity they get.