Archives for posts with tag: anti-vaxxers

Hundreds of years ago, people believed that the devil lived among them. Fearful people would witness their crops fail, their children get sick and die, their livelihoods destroyed by fire or flooding. They would look around for a cause of such evil. Particular attention would be paid to the convenient scapegoat – perhaps an old women, a stranger from out of town, or a Jew. Maybe these people were heard saying something, or maybe they were seen doing something just before the calamity struck. For the medieval mind, this was all that was needed. The devil was afoot, and because these people had done something suspicious beforehand, they had clearly channeled his evil for their own malevolent purposes.

“Because it happened beforehand, it caused it”. It’s called the’post-hoc fallacy’. Because the witch had cursed an official, she had brought on the sickness. Because the Jew had refused to give a loan to the alderman, he had been responsible for the great fire. It’s nonsense, right? It may have been a coincidence or a distortion of fact, but this, to the medieval mind, was beside the point. It happened before, therefore it caused it, therefore the witch is guilty.

The same medieval thinking persists today, except now its not witches and the devil. It’s vaccines and Big Pharma.

“Because my child received the HPV vaccine and subsequently got sick, the vaccine caused the illness”. The only evidence is a co-incidence, but to a fearful mind, this is enough. Why not other childhood vaccines like TDap, or MenC? Why not a genetic predisposition, or a viral illness? No. It was the witch, or should we say, the HPV vaccine. And the great evil behind it all: Big Pharma.

It’s the job of science to show that there is a correlation between two events. It’s the job of science to find cause amongst hundreds of probable causes. And the scientific results to date are clear: there is no connection between the vaccination and subsequent illnesses. Kids get ill at the same rate, irrespective of whether they have been vaccinated or not.

To the fearful mind, all this evidence is too much. Get away from us with all your studies and numbers and percentages. Let’s just burn the witch and be done with it. Why choose a rational course when ignorance and emotion will do?

Our medieval tale tells us something else. When the cause of the fearful is taken up by officialdom, by well-known celebrities and by politicians on the make, when fear overrides fact as official policy, things quickly get much worse. The fear is legitimised, stifling the voices of reason amid censure and threats. Official sanction permits it to metastatise into other areas of policy, thus multiplying the fear. In the case of HPV, perhaps we will not burn witches, but we will burn away our options, so that a now preventable cancer can continue to wreak damage on young lives.

Politicians, journalists and opinion formers must stand up, not for what’s popular, but what is true, based on the very best science and expertise. Following the route of least resistance and aligning with the fearful is not leadership. It is the opposite of leadership. We’ve seen these patterns before and the chaos they have caused. We cannot afford to repeat them.

Imagine tending to a very sick patient who was about to die. Imagine having, on one hand, a doctor or nurse working with the patient to make their remaining time as comfortable as possible, and comforting the family in their grief. On the other hand, you have a preacher telling that patient that they must immediately convert over to Jesus before they passed away, unless they wanted to go to Hell. Who would you choose?

Or imagine going to university, taking geology or botany or zoology, and having two classes for each subject – one that presented the scientific view, and the other threatening students that they must deny evolution and accept an 8,000 year old Earth, in order to pass their final exams.

Not appropriate, right? But this is the problem we seem to be increasingly facing these days – one of ideology over expertise.

There was a debate on the radio a few days ago where there two worlds came clashing together in an interesting way. The subject was vaccinations. On the one hand, you had people arguing from scientific and medical perspective, while on the other hand, you had people with strongly anti-vaccination worldviews. (They prefer to call themselves “vaccine informed, but let’s call a spade a spade, shall we? In the end, it amounts to the same thing).

If you were a parent, concerned about nasties such as whooping cough, rubella, measles and the flu, whose advice should you listen to? Your doctor, who, has the training, clinical expertise and direct experience working in the community with patients? Or perhaps some random person with none of this experience who tells you to ignore or distrust the doctors, that they are all shills or dupes, that they have done all their research on the Internet and are therefore more knowledgeable?

This is the choice that people have. And it should be a no-brainer. In fact, for decades it has been a no-brainer. Most people wouldn’t even think about going for the ideologue over the trained expert.

But it seems this is not as much the case today. More people choosing the naturopath over their doctor, choosing detox over vaccines and choosing all sorts of fad diets so they can avoid cancer and live forever. In certain areas, ideology is starting to win over expertise.

Much of it is marketing. Ideologues are getting better at exploiting hopes and fears. There are certain messages they put across that have an emotional impact. Tell people Big Pharma is out to get them. Tell them they only care about profits and not health. Tell them that there are poisons and chemicals being injected into their children. Tell them there is another way, and that it’s being suppressed. Tell them about the brave lone pioneers who have been castigated for their views. These are powerful, emotive messages that can be applied to any situation. They do not need facts to support them, just half-truths, glimmers of hope and a large dollop of fear.

Experts are to be distrusted, according to the ideologues. Experts, particularly individual experts, can sometimes get things wrong, so the ideologues use that against them. Knowledge is often incomplete, as is the way with science, so ideologues will exploit the gaps in knowledge for their own purposes. Companies sometimes do unethical things, so ideologues will use this to portray them in the worst possible light.

But let’s not kid ourselves – when it comes to a fight between expertise and ideology, expertise wins. It has the facts on its side.  Just maybe not the marketing.

It takes an extraordinary person to go after a global pseudoscience network and dismantle it, piece by piece. The network involved is the Genesis II cult, whose schtick has been to promise “miracle” cures to parents of autistic children. If they would only drink bleach, or have it forced up their rectums, their children would be cured of autism. These people have made their fortunes by selling industrial bleach to vulnerable parents. They couldn’t care less who got hurt in the process. Despite negative publicity and widespread condemnation, they seemed unstoppable. Business is business, right?

Then someone – a parent of autistic children – took them on. Working with concerned parents in other countries, she got the media to take note. By contacting the papers, independent journalists, TV stations, radio stations and networks, she brought the church’s tactics into the light. Documentaries were commissioned, special investigations produced, exposing Genesis II for who they were. At this time, the cult and their associates are in disarray. The light of publicity has not been kind to them. Some of the perpetrators are in prison, and more criminal convictions may soon follow.

The person who helped to make this happen is Fiona O’Leary. Fiona is an extraordinary person who I’m proud to know. Based in West Cork in Ireland, Fiona spends hours each day following up leads, talking to people around the world, reaching out to parents and victims – all the while getting the message out about the bleacher cult and their tactics. Fiona herself is on the autistic spectrum, which perhaps contributes to her tenacity. She is courageous to a fault; she has a strong sense of justice and she won’t easily give up.

Enter Andrew Wakefield. Wakefield is notorious in pseudoscience circles, having been responsible for perhaps the greatest health scare in recent memory. The story of Andrew Wakefield is as bad a tale of professional misconduct as it is possible to find. After the publication of a now discredited and retracted paper that associated the MMR vaccine with bowel and brain damage, a public health crisis emerged that resulted in old-diseases making an unwelcome return, with avoidable injury and needless deaths following in their wake. Wakefield’s medical license was revoked after he failed to disclose financial conflicts of interest and ethics violations.

Wakefield has been working hard to restore his disgraced reputation. His latest attempt is “Vaxxed“, a documentary that attempts to create a parallel history of what really happened, while scaring the bejesus out of parents. The Guardian noted how the documentary ignores contradictory evidence, while rehashing utterly discredited claims. The documentary film-maker Penny Lane commented “this film is not some sort of disinterested investigation into the ‘vaccines cause autism’ hoax; this film is directed by the person who perpetuated the hoax.” The Washington Post said it should come with a warning label: “May cause irrational anxiety, especially if taken with an empty head.” Variety Magazine called it a “scientifically dubious hodgepodge of free-floating paranoia, heart-rending imagery and anti-Big Pharma conspiracy mongering.” 

As far as I am aware, none of these highly reviewers received a threat of legal action from the producers of the movie. However, last week, Fiona O’Leary did. According to the legal notice sent to Fiona “We will ask for punitive damages and financial compensation for all losses to our business directly resulting from your actions.”

What utter cowards these people are. Fiona was within her rights to alert people to the vast problems inherent in the documentary – the facts left unsaid, the real story about what Wakefield had done, the treatment of his critics. “Vaxxed” is a piece of dangerous propaganda with a direct public health impact. By attempting to rekindle the mythical link between vaccines and autism, it puts needless guilt on parents of autistic children, implying – when there is no empirical evidence to back it up – that somehow they are responsible for what happened. If you were a parent and you knew the damage that such allegations could wreak, wouldn’t you be anxious to criticise them too? Clearly, Cinema Libre, like a classic bully, prefer to go for the small people first.

So, instead of accounting for the massive problems in their worthless and dangerous pseudo-documentary, Cinema Libre took a campaigner with a distinguished record of defending autistic parents and they threatened her with legal action. Honestly, I hope this move backfires on them utterly. They deserve every piece of bad publicity they get.

Further reading:

Makers of ‘Vaxxed’ Threaten Lawsuit Over Valid Criticism

Vaxxed distributor threatened Fiona O’Leary – they’re afraid of facts

Cinema Libre Studios and Andrew Wakefield’s Vaxxed team threaten autistic autism mom

http://www.harpocratesspeaks.com/2016/07/cinema-libre-bullies-critics.html

US film studio threatens to sue Cork autism-rights advocate

 

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